“What Matters to You” day is June 6, 2017.

The following people get our respect and admiration in recognition of tireless advocacy in the face of a courageous effort for someone else.

WhatMatters

THE POWER MORCELLATOR

What matters to me is that every woman and girl and husband in the world know the name of Dr. Amy Reed, who lived for the benefit of other women undergoing gynecologic operations with a medical device, the power morcellator. Amy just died from aggressive cancer that spread due to ther abdomen, lungs, and spine, due to this device.

What also matters to me is that every husband defend their wife like Amy’s husband, Dr. Hooman Noorchashm, did. He is to be commended for his tireless championing and scrutiny of the FDA 501(k) approval process and initiation of the U.S. Government Accountability Office’s Congressional investigation, and the adverse event reporting process, with the fellow advocate participation of Rep. Brian Fitzpatrick.

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Image Courtesy: Drugwatch

After 23 years of cancer spread by the morcellator, with not one adverse event reported by any surgeon until Amy herself filed a complaint, they won a blackbox warning on these medical devices, so its use decreased. While there is no ban on the morcellator, one can visualize it on the horizon.

You can help by donating to SlaySarcoma.com, sharing articles, and using these hashtags on social media: #morcellator #SlaySarcoma #DrAmyReed #DrHoomanNoorchashm #patientsafety #ptsafety #womenshealth #PatientsIncluded #PatientExperience

THE OPIOID CRISIS

What matters to me is that no patients commit suicide or die due to the “opioid crisis.”Many patients have already faced cutbacks or withdrawal of pain medication, through no seeming fault of their own. Many argue that this “crisis” was never a “crisis” for chronic pain patients who had gained quality of life from prescription opioids. We recognize these individuals for speaking out in defense of tens of thousands of patients with chronic pain:

Exemplary acts of kindness can be seen on “Red’s”

website, Giving Something Back. From helping students to find graduate schools, teaching how to find information in the internet, and as an advocate for people in pain,  he extends a range of volunteer activity.  Red’s June 1, 2017 post by the National Pain Report is an incredible position of staunch patient support.

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WARNING TO THE FDA: BEWARE OF “SIMPLE” SOLUTIONS IN CHRONIC PAIN AND ADDICTION

“On May 9-10, 2017, the US FDA held a workshop titled “Training Health Care Providers on Pain Management and Safe Use of Opioid Analgesics—Exploring the Path Forward.” I attended that Workshop in person to offer public comment on behalf of chronic pain patients…”

He boldly dives in on major points that leave one to question what authority or expertise really went into the CDC Guidelines. One is left with an uneasy feeling that there is much more background information on the convening and runnings of the committee. Red spells out secret meetings, selective input and questionable conclusions that are worth one’s own read here.

You can help by sharing articles and using these hashtags on social media: #chronicpain #pain #chronic #chroniclife #Spoonie #spoonies #SpoonieLife #SpoonieProblems #SpoonieStyle

 A clarification that is often made is that there is a big difference between an intravenous heroin drug addict versus someone who is on prescription opioids for pain.

 

You are invited to listen to Red’s interview on “The Buchanan Report Online” beginning 9 PM Eastern time tonight, June 6th. The format is that of a “whistle blower” interview, which Buchanan has done in many other areas of public life. They will review errors and frauds in the CDC opioid guidelines which are harming patients and driving doctors out of pain management practice. Another guest may discuss the death of a US veteran because of the Veteran’s Administration’s reported neglect. Go here to listen.
To dial in for Q&A, phone is 347-857-1710.

 

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Dr. Margaret Aranda

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